ALS Canada Webinar:
The Cost of ALS Study

Join us on Thursday March 19, 2026 at 1:00 p.m. - 1:45 p.m. ET.

Join Tammy Moore, CEO, ALS Canada and Ilayda Ulgenalp, Senior Manager, Advocacy and Stakeholder Relations for the ALS Canada Webinar: The Cost of ALS Study.

This special webinar will share the upcoming Burden of ALS study looking at the direct and indirect costs of ALS for people living with the disease, their caregivers, and the healthcare system. The last major burden of ALS study was completed in 2014, and since then the healthcare environment and the day-to-day realities for Canadians have shifted significantly.

This webinar will highlight:

why an updated study is needed;
what the study aims to learn;
how the Canadian ALS community can provide their input to inform findings; and
how the findings can support evidence-based policy advocacy and public awareness for the ALS community.

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Please note that ALS Canada does not provide medical advice or make referrals related to drug therapies or alternative therapies. These questions should be discussed directly with a medical professional – ideally an ALS neurologist, who would be qualified to interpret clinical information for individual situations.

Please visit our list of ALS clinics to help you to connect with a clinic in your area.